Candace Williams – Caring for Mom with Frontotemporal Dementia

Candace Williams is a 44 year old woman who’s been dedicated caring for her mother Robin, full time for 6 years. Her mother was diagnosed with Frontotemporal Dementia, October 1st, 2013, at the young age of 57. In order to care for her mother, she gave up dreams of going back to school to become a Social Worker or Psychologist. In addition to caring for her mother, she created a blog called, “OurFTDJourney”, as an outlet and to share her experiences of caring for her mother with others.

Before Robin was diagnosed with frontotemporal dementia, she was a substitute teacher and mother to her only child, Candace. She loved doing both. She was in the process of taking the Praxis to become a full-time teacher. But, she began having difficulty with it.

Candace noticed that her mother was having trouble being able to find her words and started to become vebally and physically aggressive. She was losing things and getting completely upset. She become apathetic, when in life she had always been very caring, sensitive, and intuitive. She became argumentative. She started having car accidents, because her judgement and decision skills were not what used to be.

Robin has been bipolar most of her life. So, when Robin started displaying symptoms of losing her words, losing things, etc…she spoke to her psychiatrist who told her it was her bipolar. Unfortunately, frontotemporal dementia is often misdiagnosed for bipolar. It took about a year for a proper diagnosis. But, the diagnosis didn’t come until after her three car accidents! Two of them happened within days to a week of each other.

Robin has a 9 year old dog named Bob and they are fast friends. They are very loving towards one another. Bob is their protector.

Candace’s goal for her blog is to not just share different experiences of caregiving, her mother and dog Bob, but it’s also to help educate to the best of her ability, and to help others know that she understands what the journey is like. That they are not alone. Because no one deserves to walk this journey alone!

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