Rita Anand – Memory Care Expert; Certified Activity Consultant; Assisted Living Manager; founder of Dementia Angels
John Baumann, NSA, JD, BBA – author Decide Success – You ain’t dead yet.; Speaker; Media Expert; World Parkinson’s Program Board
Debby Bitticks – Intergenerational Expert, Award Winning Author, Health and Caregiving Advocate , co-founder Digital Life Cloud
Dorothy Breininger – Dorothy the Organizer – Problem Solver on Hoarders; Featured on Today Show, Dr. Phil, Hallmark Channel and more…
Dr. Pamela Pitman Brown – Aging & Sexuality Expert; Gerontologist; Assistant Professor Albany State University
Susan Crowson – Certified Dementia Practitioner; Speaker; former Alzheimer’s Association Legislative Advocacy Ambassador
Kristen Cusato – Associate Director of Communications for the San Diego/Imperial Chapter of the Alzheimer’s Association
Vickie Dellaquila, CPO®, CPO-CD® – Certified Professional Organizer in Chronic Disorganization and owner of Organization Rules®
Kathryn Harrison – Author of award-winning picture book, Weeds in Nana’s Garden; Smile for Grandpa; member AlzAuthors.com
Paul DelPonte – Consultant; two term Commissioner on Aging in Montgomery County, MD; Author-Will You Still Treat Me When I’m 65?
Jennifer L. FitzPatrick – Founder Jenerations Health; Media Expert; Author Cruising Through Caregiving
Janet Fouts – Mindfulness Coach; author When Life Hits the Fan, a Mindful Guide to Caring for Ourselves While Caring for Others
Kerry Hannon – Best Selling Author; AARP’s Work & Jobs Expert; contributor to NYT, Forbes, Next Avenue; Speaker, Media Expert
Lorrie Klemons – Co-Founder Patient Action and President First Hand Success, co-author of READY…SET…ADVOCATE!
Joy Lucinda Cornelius-Klein – author Restore Joy After Loss: Life Changing Strategies to Function with Joy in the Midst of Grief, Stress and Chaos
Dr. Daniel Nightingale
CEO Dementia Therapy Specialists (US) and Dementia Doctor (UK); Actor; Stand-up Comedian; Trained by Dr Patch Adams
From apps to holistic practices to energy healing, we are striving to chill you out, take a breath, and take care of you!
In this session, you will learn about compassion fatigue and the anatomy of the body / energy body.
Caregivers can be more effective by making sure they are taking good care of their own energetic environment as well as protecting themselves from unfavorable energetic conditions in their environment. Rima will share how she has used these practices to support reducing stress in her life and share a set of five simple yet powerful practices called the SelfSET Technique that can support caregivers. Receive a link to her personal practice video.
Read more about our expert – Rima Bonario
Sentbeat is an interactive digital application for the immediate relief from emotional upset, anger and anxiety. Often time, caregivers, caught up in emotional moments, can risk breakdowns if they do not take a breath to reflect and then respond. Sentbeat can help. It assists anyone experiencing any level of emotional stress: by messaging an emotionally connected and exact coping insight that will encourage a pause and a re-thinking; by opening an enlarged scope of appropriate responses; and by guiding one to an emotionally intelligent state, leading to better choices.
Read more about our expert – Dr. Ellie Izzo
On a scale of 0-100 is your stress level 150? Caregiving for a loved one who has acute or chronic illness is no vacation…but you can choose to cruise more smoothly through the process. This presentation will help family caregivers identify some of the major stressors involved in caregiving.
Read more about our expert – Jennifer Fitzpatrick
In this session, we tackle the “Three ‘I’s’ every caregiver faces:
- The loss of Independence
- The loss of Identity
Our expert should know. He is a thirty-year caregiver for his wife, Gracie, who lives with severe disabilities. He understands the caregiver’s journey. His weekly show, HOPE FOR THE CAREGIVER, is syndicated on more than 200 stations.
Read more about our expert – Peter Rosenberger
The experience of grief occurs following not only loss from death but from ‘non-finite’ or ‘living losses’ as well. Often misunderstood and unsupported, non-death losses have unique coping difficulties. This presentation explores the challenges associated with ‘non-finite/living losses’ for adults and their caregivers and discusses other forms of loss relevant to the caregiver environment.
Read more about our expert – Lisa Dinhofer
This session is for persons who have been providing direct care over an extended time to those with traumatic, tragic or terminal conditions. It is designed for both professional and family care providers to recognize and identify if they are suffering from compassion fatigue. Practical tips for coping and finding stress busters are provided. This session is designed to empower you to become a well-balanced caregiver and … it could even save your life!
Read more about our expert – Susan Crowson
As caregivers we are sometimes over the top with anxiety and exhaustion, which doesn’t help much does it? Janet will teach us some short “micro practices” that can help calm our mind and body and lend strength and confidence in difficult situations.
Read more about our expert – Janet Fouts
Caregivers cannot carry the burden of caregiving completely on their own. They must learn to create boundaries of the activities they are willing and able to perform. Caregivers must become empowered to ask for help. In this session, Lorrie will help you find joy in your caregiving journey, tend to your emotional needs despite guilt, shock, denial and anger, and learn to ask for and receive help as an empowered caregiver.
Read more about our expert – Lorrie Klemons
Taking care of your own health as a caregiver is vitally important. Staying fit and protecting your bones is part of aging well. Exercise and activity is a natural part of your daily routine. So choose the right exercises for you and enjoy the benefits. If you have osteoporosis or are at high risk for a fracture, you need to take some precautions. Learn what kinds of exercise help keep your bones strong and what movements to avoid to protect them.
Read more about our expert – Kathleen Cody
Making Life Easier
The following topics are designed to make your life easier as a caregiver.
From organizing tips to making quick meals for you and mom, our goal is to help you simplify and pay attention to what is important.
Eliminate the Guilt. Embrace kindness and understanding – and get ready to help your aging parents make decisions about their possessions as they (and you age). DorothyTheOrganizer has been organizing individuals for nearly 25 years and is ready to provide strategies to help YOU prepare emotionally for this process, learn where to begin exactly and how to prioritize those projects. She will also, provide examples of what to say (and what not to say) when working with your parents and supply you with valuable resources in your local community for help. Make your life easy and tune into this entertaining and loving session with America’s Most Innovative Organizer.
Read more about our expert – Dorothy the Organizer
John and his wife founded eCareDiary in 2011 to provide tools, content and services for family caregivers. In this session, he will cover the advantages of using technology to make caregiving easier. We will also discuss how employers can and are using platforms like ECareDiary to help employees.
Read more about our expert – John Mills
Caregiving is the new norm. Everyone is just one phone call away from becoming a caregiver and needs to access vital information instantly 24/7 from anywhere. Using an organized cloud system automatically classifies, categorizes and indexes your life so that when you need it, you can find it. In addition to the joy and peace of mind you have, it can literally save your life and the lives of your loved ones. Your life story, pictures, values, and legacy can live on for generations to come. Ken will share information about Digital Life Cloud and real life scenarios users have faced where the Cloud literally helped save a life.
Read more about our expert – Ken Bitticks
Eating well is important for all ages, but especially for older individuals and their caregivers who need to maintain their strength and energy, while often managing chronic diseases like diabetes and high blood pressure. Erika will provide healthy eating tips, meal options, ways to stretch your meals, plus recipes that make sense.
Read more about our expert – Erika Rendon
This session will explore how caregivers can put the connective power of computers, the Internet, and the world of APPS to positive use. Reducing social isolation, managing medications, financial affairs, and even tracking mileage are all at your fingertips. Don’t feel intimidated by technology and embrace the power.
Read about our expert – Paul DelPonte
Talking with your child about dementia. Capturing life stories. Dealing with family. Yeah, we got you covered.
Family Dynamics plays a role when helping your senior loved one downsize and move out of their home they have lived in for decades. Difficulty can come when family members are not sure of what role they play. Managing the families expectations is important and vital to a smooth transition for seniors. In this session, we will walk through actual scenarios experienced everyday by family caregivers and provide the best advice that you can implement immediately.
Read more about our expert – Vickie Dellaquila
Have you ever thought about capturing your life story or that of a loved one? Chances are you know very little about the life of your parents. A recent article in Harvard’s Men’s Health Watch revealed that capturing your life story can actually have health benefits. Debby Bitticks, author of Cherished Memories, will help viewers understand how to document stories and share her own personal story about the impact documenting her story and that of her father had on her life. Included in this session is a free copy of Cherished Memories, a 96-page guide to capturing your story. A $75 value, it sold out on QVC!
Read more about our expert – Debby Bitticks
Although kids can feel scared around someone who is acting differently from dementia , with time, patience, explanation and reassurance, the relationship between a child and the person living with dementia can be very enriching for both. You’ll learn from Kathryn’s personal experience how to assure your kids have a quality relationship with their older loved one and become valuable members of the caregiving team.
Read more about our expert – Kathryn Harrison
This session will cover the basics of aging and sexuality, and how caregivers can support their patient, client, parent or significant other. We will cover autonomy, communication over-accommodation, and will discuss “normal” sexuality in later life. Additional information will be included on LGBT elders, biases including ageism within sexuality and aging, and sexuality in long term care.
Read more about our expert – Pamela Pitman Brown
Legal and Financial Caregiving
Avoiding exploitation. Managing debt. Medicaid spend down. You can't be a complete caregiver without managing the legal and financial minutia.
Financial exploitation is a fast-growing form of abuse of seniors and adults with disabilities. One in five seniors is financially exploited and only one in forty-four cases is reported. On average, victims lose $120K with an additional $36K lost by the respective caregiver(s). An estimated $36 Billion, which is likely underreported, is stolen through elder financial abuse annually. Financial caregivers are well-positioned to protect loved ones. In this session we will cover common scams, causes of financial abuse and what you can do to protect yourself and a loved one. Our expert, Howard Tischler, is co-founder of EverSafe, which monitors bank, investment and retirement accounts, credit cards, and credit data for you, your family and your clients to identify financial activity suggestive of fraud, theft, and age-related issues.
Read more about our expert – Howard Tischler
Accumulated wealth can dissipate seemingly in a blink of an eye, when women over 50 shoulder the cost of caregiving. A Merrill Lynch/Age Wave report notes that women are 66% of all family caregivers and nearly twice as likely as men to provide care from their 40s through their 60s. On average, caregivers spend $7,000 on caregiving per year; many contribute far more. Sometimes, women find the indirect financial costs of caregiving — lost hourly wages, reduced Social Security benefits and the missed opportunity for 401(k) contributions — especially high. A woman who leaves the workforce for caregiving loses an average of $324,000 in wages and benefits compared to $284,000 for a man who takes time off for caregiving. Women are also three times more likely than men to retire earlier than expected so they can become a family caregiver. In this session, we’ll discuss the direct and indirect costs of caregiving and ways employers can help and caregivers can find solutions to overcome financial challenges.
Read more about our expert – Kerry Hannon
Caregiving in the Workforce
Corporate culture around caregiving issues is slow to change. We will look at ageism, how to deal with your boss and more.
Ageism is a combination of: prejudicial attitudes toward older people, old age, and aging itself; discriminatory practices against older people and institutional practices and policies that perpetuate stereotypes about older people. When stereotypes toward older adults are widely held, they take on a social truth that goes unquestioned, which impacts decision making. This is especially important for family caregivers in the workplace because when attitudes around aging are improved, business owners, human resource experts, boards of directors, leadership teams, and colleague will better understand and care about the needs and perspectives of older employees, and employees serving as family caregivers, resulting in age-friendly workplaces. We will discuss ageism and its impact on family caregivers in the workplace; resources to help family caregivers learn more about their rights; and what can individuals do to help employers, health care professionals, even family and friends improve attitudes on aging?
Read more about our expert – Cathy Bollinger
Six out of ten people in the workforce are family caregivers. Often they face corporate cultures that do not recognize their burden or contribute to their wellbeing. Yet, corporate attention to caregivers has benefits in workforce productivity and employee retention. In this session, Tanya, sister of Nicole Brown Simpson, will share her T.A.N.Y.A. Formula for self-care and life balance while offering strategies to help conquer corporate stress, re-energize workforces and organizations for greater productivity. All of these served her well when going through multiple family traumas.
Read more about our expert – Tanya Brown
This session will show you how to stay sane while balancing work, caregiving and self. Should you tell your boss? What if co-workers are insensitive? What considerations could you ask for? Dr. Mimi will help us understand the workplace culture and ways to navigate it.
Read more about our expert – Dr. Mimi Hull
Deep Dive on Dementia Care
Dealing with aggression, boredom, dignity, hygiene, restlessness and more. We will explore the nitty gritty of caregiving for someone with dementia.
All communication is a form of behavior, thus, all behavior is a form of communication. In this session, Dr Dan Nightingale discusses how engaging positively with people living with a neurocognitive disorder can enhance this area of a person’s life and those supporting their unique journey.
Read more about our expert – Dr. Dan Nightingale
John Baumann was 41 years young when, in 2002, he was diagnosed with Parkinson’s. He was in shock. He was the top lawyer at a publicly-traded corporation. What should he say to his supervisor, co-workers? Going public was one of the most difficult decisions he had to make. All of the questions and considerations about “going public” will be addressed in this session.
Read more about our expert – John Baumann
Communicating with a person with dementia can bring a unique set of challenges. This workshop will demonstrate how PSS Circle of Care uses the Dementia RAW Method to equip family caregivers to handle everyday communication challenges. The Dementia Raw method focuses on creating connection and simplifying communication with the person living with dementia using the rules of improv comedy and the pillars of empathy. You will be able to identify the four pillars of empathy and understand why empathy is necessary to create connection and simplify communication between a family caregiver and a person living with dementia; describe the 4 rules of improv that become the foundation in which all communication between the family caregiver and the person with dementia is based; and gain an understanding of Dementia Raw as a method to equip family caregivers to handle communication challenges with a personal living with dementia.
Everyone has moments of forgetfulness. And when we see it in mom or dad, we may often just brush it off at first. In this session, we will provide a dementia primer. We compare what is “normal” aging to aging with dementia, looking at the signs to spot, the stages of the disease and the best course of action you can take for yourself as a caregiver and the person for whom you are caring.
Read more about our expert – Rita Anand.
Aging in Place
From technologies to strategies to finances and more, we provide ways for you and or your loved one to sensible stay where you are!
Lisa Cini is regarded as the leading Alzheimer’s and long-term care design expert in the nation and has been recognized for her contributions in the field. Combined with her personal experience of living in an intergenerational household, she has both personal and professional insights to share. In this session, we will discuss using technology to age in place, what we can learn from professional athletes about aging, her personal experiences with her parents and grandparents and much more.
Read more about our expert – Lisa Cini
There comes a time in everyone’s life when the place they live no longer serves them. Human nature compels us to stick with what’s familiar, but that may not be the wisest choice. So what are the options? Tracey Lawrence, founder of Grand Family Planning LLC and author of the ground-breaking book, “Dementia Sucks: A Caregiver’s Journey – With Lessons Learned” will take us through the kinds of life changes that necessitate environmental changes. She’ll review the smartest ways to address change for the best possible outcome. From renovations, to assistive technologies, to hiring help, downsizing, exploring types of facilities, she’ll also talk about how to prepare for and finance your preferred transition.
Read more about our expert – Tracey Lawrence
Learn how to build a community of support with your nearby associates, friends, and acquaintances. Just because you live alone and growing older doesn’t mean you have to isolate and risk feeling lonely and depressed. There truly are smart and easy steps to help you break through the dilemma of being alone all the time and feeling disconnected. View this video to gain hope and inspiration that will help you break the solo madness.
Read more about our expert – Carol Marak
After the Caregiving
From lessons learned to restoring your joy and purpose, we will explore the part of caregiving people forget about - when it's over.
A Certified Reflexologist & Instructor and an Intuitive Energy Healer and Medium, Joy sees first-hand the impact emotional pain and grief has on her clients. She authored Restore Joy After Loss: Life Changing Strategies to Function with Joy in the Midst of Grief, Stress and Chaosthat incorporates 10 easy to apply mindset and “heart-set” strategies on how to be calm, centered, compassionate and productive at work and home. She will help viewers understand the connection between thoughts, emotions, and physical fatigue in caregivers and show us a complementary medicine protocol that helps to reduce pain, anxiety, agitation, discomfort, and chronic illness symptoms as well as encourage self-care.
Read more about our expert – Joy Lucinda
Kristen Cusato spent 20 years as a television journalist, in New York, Texas, Connecticut and California. Her mother’s diagnosis of Lewy Body Dementia in 2009 changed everything. Kristen moved from San Diego to New York to help her best friend – her Mom – on this difficult journey. Kristen served as a Regional Director for the Connecticut chapter of the Alzheimer’s Association while her Mom was ill, sharing what she was learning as a caregiver, and teaching people about this disease. Kristen will share caregiving tips, aha! moments and mistakes many can relate to. She realized several of these things after her Mom was gone, and is on a mission to share to help others through this process.
Read more about our expert – Kristen Cusato
At some point, your caregiving responsibilities will end. Many caregivers find themselves asking: what’s next for me? Once you are no longer caring for a loved one, how will you spend your time and energy in other meaningful ways? Based on the popular Explore Your Futureworkshop series, you can use these reflections to find purpose and meaning again by asking. In this interview we will explore these reflections – How did I get here? Who am I now?What do I want?How do I create an engaged life now? You will learn that there is “life” after caregiving; why it’s important to maintain purpose; re-discover your talents, values, passions, strengths and aspirations; and tap into books and resources available to facilitate this journey.
Shifting Demographics of Caregiving
Millennial Caregivers. Grandparents raising grandkids. The late 40's Caucasian woman is not necessarily the face of today's caregiver.
Caregiving is not a common term in Africa. No one talks about caregiving in Africa even though it is taking place on behalf of children, disabled and the elderly. Africans are yet to realise that anyone who is involved in providing care is a caregiver. Our experts happens to be a professional caregiver in Africa who saw the need to advocate for the people in his society who are incapacitated especially the elderly. Unfortunately, the journey has not been easy as so many factors affect the job or caregiving in Africa – from cultural believes, government neglect, caregiver burn out, poverty, security problems, and religious believes. Jude’s insights should provide a new perspective on caregiving for us in the U.S.
Read more about our expert – Chibuike Kanu
The PSS/WFF Grandparent Family Apartments in the Bronx is the first residence built in the U.S. specifically for grandparents raising grandchildren. It serves as the hub for the Presbyterian Senior Services Kinship Caregivers Program where professional staff and partners provide a range of services both to the residents and throughout New York City to kinship caregivers – young and old. Kinship caregiving families face a unique set of challenges that require innovative solutions. This session will inform attendees on best practices in serving this population.